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Note: The
information provided here is for educational purposes only and it
should never take the place of advice from your personal health
care provider. Be sure to check with your physician.
losing weight
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Alpha1
Advocacy Alliance Alpha-1 Canada
Alpha-1
Info: Austrailia Australian
residents or those with a specific interest in AATD
issues in Australia. Alpha-1 Info: The Neatherlands Alpha-1 Info: New Zealand Support
and advocacy for individuals and families with Alpha1 deficiency
lung & liver conditions. Alpha-1 Kids Online
Support Group Alpha-1 Support UK Under
Repair Alpha-1 Swedish Homepage/ALFA1 SVERIGE Alpha-1 Voice The
sole purpose of Alpha-1VOICE is to speak out for the well-being
of the Alpha-1 Antitrypsin Deficiency
Disorder community which is continually growing in number. Alpha
Angels Memorial Alphabeaters Support group Genetic
Alliance Organization American
Association of Cardiovascular and Pulmonary Rehabilitation For help with patient assistance programs for
prescriptions, go to:
http://www.helpingpatients.org
http://www.needymeds.com
http://www.themedicineprogram.com Alpha-1
Medline Plus Health Information
American Association for Study of Liver Diseaes American Liver Foundation American Lung Association Band-aids and
Blackboards—For kids and teens coping with chronic illness Caring Voice Coalition
Comprehensive
help for the needs of patients with serious, chronic illness Caregiver
Support and Wellness For
“all caregivers and loved ones of those who are chronically
ill.” Caregiver Survival Resources Message
boards for patient and caregivers, “Ask Dr. Caregiver,”
excellent links to caregiver
resources. Children’s Liver Association
for Support Services C.L.A.S.S.—“dedicated
to serving the emotional, educational, and financial needs of families
coping
with childhood liver disease and liver transplantation.” Children’s Liver Alliance
(CLA) Lab
tests of Liver Diseases Liver and Biliary
Disease Liver Symptoms Respiratory
System Understanding
PFTs LifeNet Mayo Eating Better Second Wind Lung Transplant Association Lung
transplant chat, patient stories,and more National Institutes of Health American Medical Association National Jewish Medical and
Research Chronic
PulmonaryDisease United Network for Organ Sharing
(UNOS) Organ Procurement and Transplant Network Transplant Recipient’s
International Org. Inc.
TRIO—Transplantation and organ donation information and resources
for transplant candidates, recipients,
donors and their families. Emphysema Foundation
for Our Right to Survive (EFFORTS) National Organization for
Rare Disorders, Inc. (NORD) The
Journal of the American Medical Association The Food and Drug Administration The Internet Drug Index Well Spouses
Foundation “provides
emotional support and information to the husbands, wives and partners
of the chronically
ill and/or disabled.” With message board, chat, newsletter,
and so on. Alpha-1
by the Doctor’s Doctor Alpha-1 Reports
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