Middle
It is in loving
memory of our friends and mentors, that we continue their effort
here.
Claude, Richard,
& Paul
Important
Notice:
The information provided here is for educational purposes
only and it should never take the place of advice from your personal
health care provider. Be sure to check with your physician.
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Alphas
(Lung/Liver/Caregivers) who are members of the Main and Alpha Liver
Mailing Lists have volunteered to post their names and info to
help with inquiries about Alpha-1 within their state. If you would
like to add your name to this listing, please send your info to
Bill Poplett at aatbill@cox.net
More info here
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Alpha-1 International
(“MAIN”) Mailing List
Information exchange, sharing and support for all Alpha-1 patients
and caregivers.
TO JOIN: Send
e-mail to:
ALPHA-1-REQUEST@home.ease.lsoft.com
Main List Archives (List
members only)
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PLEASE
NOTE: Due to problems with HOTMAIL accounts getting the
postings, it’s advisable to NOT use HOTMAIL but instead your
regular ISP or a Yahoo free e-mail address or the likes.
Same holds true for signing up for the Liver List below. List Admin Volunteer Assist’s:
Jennifer L., and Ed T.
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Alpha-1
LIVER Mailing List
Information
exchange, sharing and support for patients, caregivers,
family and friends of those dealing with the Alpha-1 Liver condition.
TO
JOIN: Send e-mail
to:
ALPHA-LIVER-REQUEST@home.ease.lsoft.com
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Introductions—A
special website has been developed for the Alpha1 Liver Mailing
list as a way to introduce themselves to each other on the list.
(List members only)
Liver
List Archives (List members only) Administrator: Nancy
Cropper nancycropper@JUNO.COM as
List Coordinators. Advisory Board: Steven Post, Chairman and
Sue Thompson and Mary Wallace
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 Alpha-1 CARE (Caregivers Are Really Exceptional)
“This is a place for caregivers to meet, find help with problems, discuss ideas and needs and talk with other caregivers who understand. This group is open to all caregivers not just those who deal with A1AD.” Moderators are Barb Speers and Carol Hosley
TO
JOIN: Click here, then click
on “Join This Group”
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ASSIST
Mailing List
“to provide encouragement, share experiences, discuss
concerns, acknowledge stresses and celebrate triumphs in caring
for Alpha-1 loved ones.”
TO
JOIN: Click here, then click
on “Subscribe Now”
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COPD
Caregivers Mailing List
“bringing caregivers together to share anything that
they need to share in order to help each other in every way
possible.”
TO JOIN: Click
here, then click on “COPD Caregivers,” then
click on “Join COPD Caregivers List”
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Panniculitis
Mailing List
“enabling affected members and family members to learn
more about [all forms of panniculitis] and to exchange information,
resources and mutual support.”
TO JOIN: Click
here, then click on “panniculitis” SEARCH
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Second
Wind Mailing List
“to improve the quality of life for lung transplant
recipients, lung surgery candidates, people with related pulmonary
concerns and their families...”
TO JOIN: Go to http://www.2ndwind.org/join.htm
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